On my spirit.

Sometimes I will just wake up heavy hearted with something.  This morning, Isaiah 41:10, Matthew 6:34, and Isaiah 55:8-9 have been on my heart.  They read like this (in NIV):

So do not fear, for I am with you; do not be dismayed, for I am your God.  I will strengthen you and help you; I will uphold you with my righteous right hand.  Isaiah 41:10

Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.  Matthew 6:34

“For my thoughts are not your thoughts, neither are your ways my ways,” declares the Lord.  “As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.”  Isaiah 55:8-9

 

If you have been reading this blog long enough, you know that I love music.  I love words, I love books, and I love music.  If a song has substance to the lyrics, I am all over it!  This song by Hillsong United just reminds me to keep pressing on.

Honestly, I struggle with trusting God with the ways in which my life develops.  That just reminded me of this song, so I have to share it too before I can go on with what I want to “say.”

Anyway, I really just need periods of deep reflection during this time of recovery, challenge, and struggle to just remember what He has done for me.  God has been better to me than I really even deserve, honestly.  Good music helps me get into that Truth Time with Him where I just thank Him for all He’s done, all that He’s doing, and all He will continue to do.

I don’t understand why my life has taken the turns it has, but maybe I don’t need to understand.  Maybe life isn’t about having an answer for everything, but it is about knowing Who holds your life and best interest at heart.

I would have never guessed I’d have a brain injury, nor would I have asked for one, but it has awarded me so many opportunities to reach out to others “like me.”  I have written a blog that made its way to The Brain Aneurysm Foundation, I have made survivor friends all over the world, my Facebook inbox has been filled with messages of “thank you,” “you are so strong,” “you give me hope,” and things of the sort.  It’s really incredible.  I wouldn’t have that opportunity if I did not have this experience.

Last night, a friend of mine called me and told me that he watched The Crash Reel and that I should really look into it.  He said it opened his eyes, gave him insight into the world of brain injury, and knowing that I’ve had my own experience with a brain injury, I would really like it.  I actually can’t wait to see it, just as soon as I can find out when it’s playing.  I think it’s awesome that Kevin Pearce is sharing his story, unashamedly.  He suffered a TBI as a result of a snowboarding accident.  I know for certain that it’s easy to feel so isolated, so different, and so alone when you acquire a brain injury.  I am thankful for people like him who speak out.  :)

I get weary sometimes, but I am still fighting.  I have to stay strong, because my work here is not finished. :)

Hope that you are doing (and feeling) well wherever you are, and keep the faith, keep the fight!!

 

 

Sometimes only music makes sense.

There are songs that you love, just because they’re good songs.  Then there are songs you love because you can relate to the lyrics and emotions.  Ever since my brain lost its mind (haha), I have found new meaning in some of my favorite songs.  I can easily find myself tearing up or tears falling as I listen to the words and truly let the emotions sink in.  I am so grateful that I didn’t lose any hearing, or ability to comprehend language.  That would really be catastrophic to me.  Music helps me heal, helps me understand, helps me relax, helps me breathe, helps me feel, helps me know that at some point in time, someone, somewhere once felt as I feel.  Anyway, here are a few of those songs. :)

Standout lyrics: Basically the entire first verse haha… “If you could soldier on, headstrong and through the storm, I’ll be here waiting on the other side. Don’t look back, the road is long.  The first days of the war are gone.  Take back your former throne, and turn the tide.” “I know pain is just a place where the will has been broken.”
Basically, don’t give up. Keep moving forward, and keep fighting. “I’ll be here waiting on the other side” reminds me of me not feeling like myself, fighting through all of this mess, but finding out that “on the other side,” I’m still me.  That positive, optimistic, courageous girl is still in there.  Don’t focus on the past, but instead, “take back your former throne and turn the tide.”  Take your life back, and blaze on ahead.  Don’t let this reduce you or break your spirit.  You keep fighting, and you never stop. :)


Standout lyrics: “We all have a weakness, some of ours are easy to identify.” “If I turn into another, dig me up from under what is covering the better parts of me.” “So when sickness turns my ego up, I know you’ll act as a clever medicine.”
I could probably stop right there.  That first line is so… Poignant and so relevant to brain injury.  You can’t see the injury, but it’s there and it has an affect on everything we do.  Brains don’t heal like bones.  Once it’s injured, you just have to figure out how to live with it.  It hurts.  Some days you feel normal again, but most days you don’t.  You just kind of deal with it.  This song also makes me feel how important it is to have someone there for you.  Someone with whom you can be your most raw, primal, true self.  Someone whose love for you overshadows any outrageous emotions/behavior you might exhibit throughout this wilderness that is brain injury. (Preferably) Someone who knew you before you got sick, so that they can remind you of who you are.  That your brain injury does not define you, even if it changed you. “You” are still in there, somewhere. They aren’t afraid to go into the depths to love you and show you who you are.


Standout lyrics: “This is my prayer in the fire.  In weakness, or trial, or pain.  There is a faith proved of more worth than gold, so refine me Lord, through the flame.  I will bring praise, I will bring praise.  No weapon formed against me shall remain.  I will rejoice, I will declare, ‘God is my victory, and He is here.'” “This is my prayer in the battle, when triumph is still on its way. I am a conqueror and co-heir with Christ, so firm on His promise I’ll stand.  I will bring praise, I will bring praise. No weapon formed against me shall remain.  I will rejoice, I will declare, ‘God is my victory, and He is here.'” “All of my life, in every season.  You are still God. I have a reason to sing, I have a reason to worship!”
This. Song. I love it so much!  I could not have gotten through what I’ve been through without God (or the people He’s placed in my life) and my faith is very important to me.  However, I will not lie and say I don’t struggle.  Why?  Because I keep questioning why a “good God” would allow all of these painful experiences to happen to me.  Wasn’t being born so premature and literally fighting for my life since the second I was born enough?  Weren’t all of the painful experiences enough? Don’t You care about me, God? Don’t You see I’m tired of the struggle, I’m tired of the fight?  Don’t You know my heart? Don’t You know I’m over this now?  Why can’t You ever just tell me what lessons You want me to learn instead of making me go through all of this mess? All questions I’ve honestly asked Him, then felt bad about asking Him.  He gave me life, and He continues to let me live.  Am I even “allowed” to ask Him questions? Am I even “allowed” to be mad?  Then I realize, I am just a vessel.  Perhaps none of this has anything to do with me, but through my struggles, I am able to truly reach others.  Through my struggles, others are able to identify and feel safe.  I have God on my side, what reasons do I have to complain?  This song is just a reality check for me.  It reminds me to keep trusting Him, even when I don’t understand (which is huge for me, I’m extremely inquisitive and have to have a plan) what is going on in my life. I know He has never forsaken me, not one time even when I’ve felt like I’m an island, lost in the wilderness with no idea how to get out… He is still with me.  It makes me still give Him thanks and praise for all that He is doing in my life. I know the war isn’t over, but I know that I will continue to fight as long as I have a pulse and air in my lungs.  I know that in the end, I will prevail and I know that God is already there. It’s like my grandma tells me “you grow through what you go through.” :)  When I listen to this song, I feel empowered, I feel like I have no choice but to fight, I feel like I have no choice but to say “thank You,” and give Him praise through these struggles.  This song reaches my heart and says “onward we go.”

That’s all I’ve got for now, I have been thinking about writing and posting this, but haven’t gotten around to it until now.  Hope that y’all are all doing well, wherever you are.  Just remember to keep the faith, keep the fight! :)

“Make good choices”

“Make good choices” is one of my dad’s favorite sayings.

It’s been one year since I made the best choice ever.  I  decided to quit trying to fight my own battles, and let God handle what is much bigger than me.  March 23, 2012 was the day that I completely broke down and admitted that I in fact, could not handle my recovery on my own.  I’m a very determined and strong willed person.  I’m the type who makes up her mind, and her mind is made up.  I made up my mind in the hospital that I was not going to let an aneurysm ruin my world.  I made up my mind that I was going to be resilient, and as strong as I could be.  I made up my mind to use to my mind to fuel my body.  I believe that your mental state has a direct affect on your body.  I know that’s true, even more so, now because a lot of the issues I struggled with for months when I came home last year are virtually non-issues today.  Anyway, I also consider March 23, 2012 to be the day that I began my “real-lationship” with God.  I always loved God, and knew of God before I got sick… I even talked (prayed) to Him sometimes, but He was not number 1 in my life.  I believe that this illness happened to me to make me realize the power of His love for me, and force me to depend on Him.  God knows I’m stubborn.  He knows, because He knew I was going to be born before even my parents knew.  Haha.  He knows how I deal with trials, He knows how responsible I am, how much of a guilty conscience I can have when I feel like I’m not succeeding, and how I deal with stress.  He knew that the tiny little 2 mm aneurysm was going to rupture and nearly kill me.  He knew that once I realized what had happened, I’d make it a point to rise above and better myself.  He knew that I thought I could do it on my own, and He knew that I would try.

I did try, for a little over a month.  I would become so frustrated at the outrageous medical bills piling in when I knew I was in no position to work.  I was annoyed because I wanted to be responsible and do my part to handle my financial obligations.   I would become so frustrated at the constant sickness I felt everyday.  The headaches, the dizziness, the aches and pains that would send me into a panic where I began thinking I’d die.  I would become so frustrated and sad that this happened to me, and I’d ask “Why? Why me? Why did You let this happen to me?  Am I that bad of a person?  What did I do wrong?” I’d cry, a lot.  The anxiety and stress was overwhelming.  Some days, it still is a lot to handle, but it reached a turning point on March 23.  I remember laying in my bed and I just decided to pray.  I decided to tell God that I was “giving up” and letting Him have this recovery, and have my life, because I don’t want it anymore.  That was easily the best decision I’ve ever made.  You know what?  I think that’s what God wanted all along.  I think He wanted me to get out of my stubbornness and pride screaming at me “You can do this, you can beat it on your own, just keep going!!!” and listen to Him.  His heart has always been opened towards me, He’s always been willing and waiting with open arms.  I’m the one who couldn’t get past my own stubborn pride and just give it up.

I feel like everything changed that day.  I had reached a point of desperation, but that’s exactly where He needed me to be in order to show me who He is and what He can do.  As if I didn’t already know that, because I definitely escaped (a second time) an illness meant to kill me.  But He wanted more than just for me to recognize that I’m alive.  He wanted the rest of my life, and I was truly ready in my heart to give it to Him.  No looking back, no turning back.  I’ve been walking with Him ever since, and I have to say that life is so much better this way.
I laugh, thinking back, because I don’t know what took me so long to get here.  I feel a little sad that it took something so traumatic and threatening for me to give up the idea that I can do this all on my own…  But I’m here, and it’s definitely better His way.  I say it a lot now, I’m thankful for this experience, and even my worst days with God are better than my best days without Him.

I truly mean that.  Life is good, even if it doesn’t always feel good.  God has been too good to me for me to not give Him the number 1 spot in my life.  He’s the only One who deserves that spot, and He’s the only one who can fill it.  I still go through tough times, just as any person does, but I handle life differently now, and I’m forever grateful for it.  I’m forever grateful for the love of a Father who still loved me, even when I wasn’t living my life for Him.  What a blessing. :)

One year annie-versary!!!

Wow.  Officially one year!  As a matter of a fact, as I type this, it really may literally be one year to the minute.  Haha I don’t remember the exact time, but I do remember it was around 9:30 PM the night of February 4, 2012 that my aneurysm ruptured!  It’s just 9:37 PM, now.

I don’t have much to say because I’m feeling rather introspective, I have a slight headache, and I’m mostly tired.  I just wanted to blog a little bit to make sure I say something on this day.

I’ve learned a lot in this past year, and I continue to learn more everyday.  Life is a gift, a blessing, and should be cherished.  One of the biggest lessons I’ve learned is that tomorrow is a privilege, not a promise.  We just always go about our days as though we’re guaranteed the days following.  That is not always the case.  Some people won’t see tomorrow, some won’t even see the end of the day.  That’s why it’s important for us to make each day count, instead of trying to count the days.

 
I’m just really grateful, and really humbled by this experience.  I still have rough days, I am still in shock that this is my real life, I am still amazed by how much can happen to you.  The year went by so slowly, but once I started dealing with the fact that this was “the new  normal,” it began to fly by.  The quickest and slowest year of my life.  Definitely the most challenging, to date.  But you know?  I feel better for it.  I feel like this has brought me so much closer to God, and I want nothing more than for Him to use me.  I can see Romans 8:28 playing out in real (modern day, and my personal) life, and I’m just really grateful.

So… One year down, and looking forward to the rest of this journey.  I may not know the number of days I have on this Earth, but  I’ll take whatever He’ll give me.  Praise God for bringing me this far, and still carrying me through. I now know that life will throw some pretty tough obstacles in our path, but if we have God on our sides, we can overcome.  It provides a certain level of peace to me. Life is good, my friends.  Life is good!!!  Huge thank you’s to my family and friends who have stuck by me throughout all of this, as well as the “brain buddies” I’ve made because of our shared experiences!  Couldn’t get through without y’all, either!


Be blessed, y’all, and goodnight! :)

I’m not sure what to title this, so this will have to do!

“Plus, when you have God, you’re always happy.”

That was the reply one of my followers/someone I follow gave me on Twitter when I wrote him a direct message asking him if He was always happy.  Haha for real, this guy posts some of the most uplifting, bright, happy go lucky tweets of anyone that I follow.  I actually really appreciate people who also have bright spirits in this world.  It’s too easy to “go to the dark side.”  Anyway, naturally, his reply sparked a thought in my mind, and I told him I’d have to write a blog about it.

There’s a difference between joy and happiness.  In my opinion, happy is a state of mind.  It is temporary, and it is fleeting because it is dependent on circumstances.  To have happiness, every condition needs to be just right.  One inch too far to the left or the right, and your mood comes crashing down.  Joy is a state of heart. True joy is found in Christ, and it is permanent, regardless of the circumstances.  The circumstances may never be right, but you will have joy because your hope, peace, comfort, safety, and identity are found in Him.

He is the only One who is able to offer us what we truly need in this life.  As I’ve began a real-lationship with Him after nearly dying (again) earlier this year, I realized that in the end, He is all that matters.  Nothing I can acquire on this Earth can even begin to measure up to who He is, how He loves, what He has to offer.  I highly encourage people to seek Him when they feel like their life is missing something, or someone.  He is so often the missing ingredient when we’re trying to get our lives to taste “just right,” yet few actually seek Him out.

I’ve honestly always been the optimistic type, but this has been a year that could easily change that.  It’s literally been one thing after another since the middle of January.  I had a ruptured brain aneurysm on the night of February 4, 2012. As I’ve said before, I had no idea what an aneurysm was until mine ruptured.  Having emergency brain surgery, surviving a life threatening condition, trying to figure out “the new normal,” standing by friends as their loved ones have passed away (whether expected or unexpected, it still hurts), having to make some tough calls to make sure that I’m putting my health first, turning 25, realizing and accepting that my life is absolutely nothing like I’ve ever planned it to be, realizing and accepting that my life will be different but still a version of normal now, learning to live with a newfound, unexpected, mild acquired brain injury… Yeah, those are all events that have had the capacity to destroy my outlook.  “Why, how can you still manage to be happy?” is a question I hear very often from people who hear my story, and I have to say that I’m not always happy, but I am always filled with joy.  Why?  How?  Because!  I put God first in my life, now.  He’s no longer on the back burner, per se.  Just there if I need Him.  No, no, no.  He is here because I need Him, not if!

He created us to need Him!  He created us to turn to Him in all circumstances in life, even the things that we think He wouldn’t care the least about.  Philippians 4:6-7 (NIV) reads “Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.  And the peace of God, which transcends all understanding, will guard your and your minds in Christ Jesus.”  That verse has been instrumental in my recovery, because sometimes I feel ungrateful complaining about the (minor) deficits I do have, and the headaches I experience.  I think “you’re alive, Robin, stop complaining! It could be so much worse and here you are whining about a migraine.  Oh boo hoo, besides, God’s got better things to deal with than your silly little headache.  Tough it out!”  But clearly, I am able to take my migraines (fatigue, difficulties concentrating, and memory lapses haha) to Him, even if I could’ve suffered something much, much worse.

People have also asked me “So, you mean to tell me, you still love ‘a’ God who would make you so sick you almost died? What is wrong with you?”  Haha.  I have to somewhat laugh at this.  First of all, He did not make me sick, He allowed me to become sick.  God knows how to reach each of us, because He created all of us.  God knows that my mind is both my best friend and my worst enemy.  God knows that He had to cause something drastic in my body to get to my (soul) heart.  I’m not saying that everyone whose ever had a serious illness is the work of God trying to get to them, either.  I’m just saying that He customizes the ways He reaches us, depending on what He knows will get to us.  I’m just saying that in my particular case, I do believe that God allowed this to happen to reach me.  I’m just saying that yes, I do still love Him, praise Him, and seek Him because He proved the power of His love, even when He didn’t have to.  He showed me immense grace and mercy, because He’s giving me another chance, and this time I want nothing more than to live for Him, share Who He is with others, and have the chance to hear “well done, good and faithful servant!” when it is my final call Home. 

He proved the power of His love when, on the morning of surgery, I was able to write that I wasn’t scared because God is with me.  He proved the power of His love when the doctors, nurses, therapists and staff were able to treat me well.  He proved the power of His love when my family, my friends, and even strangers were pouring out precious time and energy to help get me back to “me.”  He proved His love when people would encourage me, remind me of who I am, love on me.  God works through many (and sometimes I find quite strange) ways.  Do I understand them?   No.  I can’t even begin to fathom how He works.  Isaiah 55:8-9, right there!  But I do know that I am entirely grateful, no matter what has had to be done for Him to accomplish His works.  Philippians 1:6 and Romans 8:28!  Those verses in bold just describe this year, this experience, this new life I’m living.  Romans 12:2 :)

So, all in all, even during my not so awesome days, I am joyful at heart because I know there’s a deeper reason for this.  I know it isn’t about me becoming sick, it isn’t about me nearly dying, it isn’t about me at all.  I’m merely a vessel He’s decided to use to display who He is, and I’m willing and able to speak about it.  I’m willing and able to share my test turned testimony.  I am unashamed, and I am completely thankful that He has given me the opportunity to be able to share His Truth.  It’s really awesome.  I was never a “bad” person (haha quite the opposite–considered ‘miss goody two shoes’ by most) before I became sick, but my heart wasn’t right.  God searches our hearts. See: Jeremiah 17:10.  We can do the most philanthropic, loving, kind, caring acts on this planet, but if our heart isn’t right, then we are not right.  I did good, but was my heart always good?  Were my motives always in the right place?  I can honestly say no, not always.

I got a good wake-up call, a solid reality check.  My ears, eyes, and heart are wide open.  I’m attentive, I’m listening, and I’m doing my best to live right, from the heart, every day that I am blessed to see.  That’s what joy is.  I’m not always happy, but my heart is always filled with joy. :)  He is giving me another chance, to make it right, when He surely did not have to.  The odds were totally against me, but He said “no” to a physical death, in exchange for a spiritual death and rebirth.  What’s not to find joyful about that?  Not everyone is so blessed, and plenty of people die everyday, having not had the chance to make it right.  As I say, as I’ve learned this year, “tomorrow is a privilege, not a promise.  Make it right today!”  If you’re breathing, then you’re able to make it right in your heart with Him.  Confess your sins (He already knows, anyway), repent, and allow Him to work within you to change your life.  Well, the life He’s letting you borrow everyday.  We all belong to Him at the end of the day. :)  He’s a great caregiver.  Loving, kind, generous, and able.  Seek Him out, return to Him the (soul) heart He’s blessed you with, and live your life full of joy, regardless of whether or not you feel happy.  He’s able to provide.  I promise!  Besides, I can honestly say that my worst day with Him is better than my best days were without Him!  I sincerely mean that, too.  Try Him out, you’ll see it for yourself. :)

If you’ve read this, thank you.  I hope that you have a blessed day, and that something here “spoke” to you if it’s something you needed to hear.  If it has, you’re welcome.  Give God praise for the events He lines up that spark thoughts like this in my mind, where I feel I have to share it with someone.   Life’s just funny like that.  Go out, smile, and breathe.  If something is holding you back, remember that you can turn to Him with anything and He will hear you.  Allow Him to guide you where you need to go, and allow Him to move within your life.  Also, remember that happiness is dependent on circumstances, true joy is not.  True joy is only found in Christ.

Philippians 4:10-13 (NIV)  “I rejoiced greatly in the Lord that at last you renewed your concern for me.  Indeed, you were concerned, but you had no opportunity to show it.  I am not saying this because I am in need, for I have learned to be content whatever the circumstances.  I know what it is to be in need, and I know what it is to have plenty.  I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want.  I can do all things through Christ who gives me strength.”

Stay tuned!

I’m gonna be writing a post or two tonight or tomorrow. Or maybe even tonight and tomorrow! Haha. A friend of mine posted a heartwarming status this morning that really drove home something I’ve been pondering a lot, lately. I’ve spoken with him, and he’s gonna be awesome as always and allow me to share his status with y’all to piece an entry together.

Hope that you are all well! I’m doing good, taking it one day at a time, as usual. Life is good, even through the challenges thrown my way lately. I’m gonna make it, I always do.

:) keep the faith, keep the fight.